AFA Teens Receives Honorable Mention in National Family Caregiving Awards, sponsored by the National Alliance for Caregiving and MetLife Foundation... click here
TIME FOR US, a camp for teens from 10 to 18 who have a loved one with Alzheimer’s disease or another neurological challenges, will be operating for its fifth summer. Activities include ropes challenge, tower climbing, canoeing, water sports and field sports; and a portion of each day focuses on a healthy brain, utilizing a unique Keeper of Memories program based on nature and nurturing.
The camp is sponsored by Alzheimer’s & Dementia Alliance of Wisconsin and will run from July 14 to 19, 2013 at Lutherdale Camp, Elkhorn, WI. For information, call 608.232.3400 or visit www.forMemory.org.
Max Wallack, a 16-year old college sophomore and Alzheimer’s advocate, is calling on the Alzheimer’s community to help him raise $10,000 toward Alzheimer’s research via an online contest. The contest recognizes teen champions and is sponsored by Kids Who Give, a national program that celebrates ”the best in today’s youth. ”
To support Max, all we need to do is to cast your vote online—and you can continue to vote one time a day until February 5, 2013.
Max would use the winnings to support Alzheimer’s research at Boston University’s School of Medicine. He is currently a research intern at the university’s Alzheimer’s Disease Center.
Max , who lives in Natick, MA, is no stranger to Alzheimer’s awareness. As a caregiver to his great-grandmother who had Alzheimer’s disease, Max saw first-han d the impact of the brain disorder on family and the community. In 2008, he founded Puzzles to Remember after noticing the therapeutic effects of puzzles on people with Alzheimer’s disease. Since then, the non-profit organization has collected and distributed more than 18,000 puzzles to facilities worldwide that serve people with Alzheimer’s disease.
You can learn more about Max in th e winter 2010 issue (page 12) of care ADvantage, AFA’s quarterly publication for caregivers of individuals with dementia.
So vote, vote often, and spread the word so we can all root for Max’s cause!
Connie Siskowski, RN, Ph.D., director of the Caregiving Youth Project (CYP), a program of the American Association of Caregiving Youth, Boca Raton, FL has been nominated as a 2012 CNN Hero, a year-long initiative that honors everyday people who are changing the world.
CYP, the first program of its kind in the nation, provides direct services to children who care for ill, disabled or elderly family members. Direct services include skills building classes and support groups in school, recreational outings, and connecting families with resources.
As a former child caregiver herself, Siskowski has a special understanding of the unique challenges these young people face. Click here to view her story.
The Family Caregiver Alliance recently chose to profile AFA Teens as the key feature on its Web site.
In a question-and-answer format, AFA Teens staff answered questions about the division, the background about its founding, major accomplishments and its impact on the community.
To read the interview, click here.
AFA Teens was recently named a recipient of the prestigious Rosalinde Gilbert Innovations in Alzheimer’s Disease Caregiving Legacy Award.
The Rosalinde and Arthur Gilbert Foundation and the Family Caregiver Alliance are presenting the awards of $20,000 each to the Alzheimer’s Foundation of America and three other nonprofit organizations in recognition of programs that “exemplify outstanding service and innovative strategies in serving individuals with Alzheimer's and their caregivers.” They selected AFA Teens in the category of diverse and multicultural communities.
“Receiving this award reinforces the value of programming for this age group. We are committed to serving this often overlooked population, many of whom are devoted caregivers themselves,” said Eric J. Hall, AFA’s president and chief executive officer.
Fellow recipients of the award are: Songwriting Works Educational Foundation, Port Townsend, WA, Alzheimer’s Association California Southland Chapter, Los Angeles, CA, and Mountain Projects, Inc., Waynesville, NC.
On October 6, Katherine Henley of Phoenix, the 2010 AFA Teens for Alzheimer’s Awareness College Scholarship winner, spoke at a briefing held by the USAgainstAlzheimer’s in Washington D.C. Before 75 attendees, the Colorado State University student shared her experience in coping with the loss of her father to young onset Alzheimer’s disease, a rarer form of the disease that affects individuals in their 30s, 40s and 50s. Her father was diagnosed at age 41 and passed away three years later.
USAgainstAlzheimer’s is a new campaign to mobilize Americans to stop Alzheimer’s disease by 2020, and the briefing was held to urge lawmakers to commit additional funding for research as part of a disciplined strategy to meet its goal. In addition to Henley, the speakers were Supreme Court Justice Sandra Day O’Connor (Ret.), Senator Susan Collins (R-ME), Senator Amy Klobuchar (D-MN) and Nobel Prize winner Stan Prusine.
In her heartfelt address, Henley said, “The face of Alzheimer’s disease is changing. It’s becoming more and more prominent in younger families. To most, my family’s experience with Alzheimer’s disease is tragic but novel. Assumptions that Alzheimer’s disease is only affecting older generations is completely wrong. It can and does affect younger generations like my father and my uncle. Something needs to be done with Alzheimer’s research and it needs to be done now, or otherwise stories like mine won’t be so novel anymore.”
To read Henley’s winning essay, click here.
A camp that uniquely caters to children and teens whose parents or grandparents are living with dementia will be open this summer in Wisconsin. The program offers traditional camping activities, as well as the opportunity to become more educated about Alzheimer’s disease and related illnesses.
“Time for Us: Summer Camp for Teens” is designed for children and teens--ages nine to 16—who have a relative with memory loss. It is sponsored by Alzheimer’s & Dementia Alliance of Wisconsin and for Memory, a network of persons affected by early memory challenges.
While the week is filled with activities such as ropes challenge, canoeing and field sports, there will also be educational programs related to Alzheimer’s disease. Campers will learn new coping skills, gain peer support and foster new relationships with teens in similar situations.
In addition, in conjunction with AFA Teens, camp participants will be composing poems, songs, artwork and other creative works to post on the AFA Teens Web site as a means of expressing themselves and encouraging other teens to do the same.
Time for Us will run from August 8-13, 2010 at the Lutherdale Adventure Camp in Elkhorn, WI. Scholarships are available. Click here to download a registration form.